LCH varies from patient to patient and can affect one or several parts of the body, for example:
Bone - bumps or indentations, broken bones or sore limbs, headaches
Skin - persistent rash, often like cradle cap, nappy rash or a rash in the folds of the skin
Lung, liver, spleen, bone marrow - breathing problems, jaundice, anaemia
Eye - vision problems or bulging
Teeth and gums - loose/lost teeth, swollen gums
Stomach problems - diarrhoea, sickness and poor growth
Pituitary Gland - hormonal problems which can cause excessive thirst and urination
Brain, spinal cord - learning difficulties, unsteadiness, lack of co-ordination
Children may also have general symptoms such as fevers, weakness or failure to gain weight. Some children can seem very well, which can make diagnosis even harder to take in.