MEMBERS of the Circle of Friends are taking part in a variety of activities to raise money for The H R Trust.
Treasurer Howard Ingleby and friend Jason Miller are taking part in the Skyline London to Paris Cycle Ride between June1st-5th.
During the five day trip, the pair will be cycling 550km passing through some of history’s most famous landmarks and battlefields.
After beginning their journey in London, the pair headed to Dover and after crossing the Channel to Calais, they will cycle through Abbeville and Beauvais, before finally arriving in Paris.
Howard said:“The Histiocytosis Research Trust is the only charity in Europe funding research into the rare diseases Langerhan’s Cell Histiocytosis and Haemophagocytic Lymphohistiocytosis. We need £380K now to fund some very exciting research projects to help us find a cure.”
Simon Harper is due to take part in the Mazda Blenheim Triathlon on June 4th and Anne and John Devenney together with Nicola Wilkes will be taking part in the Great Midlands Fun Run on June 5th.
Nicola is taking part in the run in memory of her boyfriend’s mother, Carol Goodbourn, who died of HLH earlier this year.
To help with her training, Nicola has downloaded an Iphone application ‘Couch to 10K’ to help her train for the fun run. Despite being a 13 week programme, Nicola will have only trained for eight weeks when the run takes place but reveals she has thoroughly enjoyed it.
“After I have completed a run, I feel so good about myself and that feeling cannot be replaced at the moment especially as I feel I am doing some good for not only myself but for The H R Trust. The support has been fantastic and I am very overwhelmed by the generosity there is out there although I still need sponsoring as the more pounds I get, the closer we are to finding out more about this terrible disease and one step closer to a cure.
“I feel very privileged and honoured that I can represent this worthy cause on June 5th and hope to make a little difference with the sponsor money,” explained the 27-year-old.
Anne and John Devenney will be taking part in the run in memory of their son Cameron. John will be wearing a 6ft Iggle Piggle outfit with the hope of raising more awareness about The Trust and HLH.
Sherrie Bennett has organised a Family Fun Day with special guests Zippy, George and Bungle from children’s TV programme, Rainbow. The Wizard of Oz themed event takes place on Saturday June 11th at Broomhall Recreation Ground, Broomhall Lane, Sunningdale, between 11am and 4pm. Further information can be obtained by emailing Sherrie at Sherrie150@btinternet.com
Sherrie also organised the Shining On Annual Netball Charity Cup in Woking recently during which 12 professional teams took part.
Emma Krug was so moved after learning that her five-year-old nephew Ben was suffering from LCH, she has arranged a Spring Fair also on Saturday June 11th.
She said: “My mum and I want to raise awareness about this particular disease because it is very rare. We also feel that as it is so rare, research is vital. My mum, Lucy (Ben’s mum) and I really want to help raise money for The Trust in any way we can so that diagnosis, causes (if any) and treatment can be quicker.
“We would like to thank The Trust for all the help, support and advice that they have given us as a family and want to make other sufferers and their families aware of this small but wonderful organisation,” added 30-year-old Emma.
The fair will be held at the Church Rooms, Ludham, Norfolk, between 1pm and 4pm. Further information can be obtained by emailing Emma at emmakrug@btinternet.com
Brett Hill will be taking part in the C2C Workington to Sunderland between June 11th-12th while employees of YPO in Wakefield will be taking to their bikes and cycling 128 miles between Morcambe and Filey.
On June 19th, plucky Emma Holloway will be soaring through the skies when she undergoes a parachute jump in Cambridge.
The 22-year-old explained:“Whilst I am nervous about doing the jump, I am also very excited. I would like to raise at least £500 for the Trust which has been very supportive to my future brother and sister in-law.”
And part-time musician Kevin Britt has recorded You Raise Me Up with all proceeds being given to The Trust.
Kevin explained: “I decided to record the track, not only to raise money but also to give the Trust a helping hand. I know what it is like to have a family member ill and I know how hard it can be. I have always wanted to do something for a charity and raise awareness and thought to myself that now is the best time for me to help out in some way.
“I am hoping this song will help us raise lots of funds and raise awareness and also realise what family means.”
The song can be downloaded from both iTunes and Amazon mp3.
If you are raising money for the Trust please contact Shelley who will help publicise your events with the local media in your area. Shelley can be contacted on 07850 740241 or by email Shelley.ross@hrtrust.org